Yesterday, I met with my doctor and it looks like he'll do the biopsy next week. He was MUCH nicer than the first opinion I had of him. Partially because he was just nice in general, but mainly because, though my new symptom confused him, he didn't just blow it off. He called the neurology department and got one of the doctors to come to the clinic I was in to see me. He seems to think the numbness on the side of my head is migraine related but wants to see me in the office next week.
Today was my 8year olds re-check with the eye doctor. It has officially been deemed a tumor--the same kind, Infantile Myofibromatosis (and yes I have to help the doctors spell it...sad, no?). It's in the cavernous sinus:
Def: Cavernous sinus: A large channel of venous blood creating a "sinus" cavity bordered by the sphenoid bone and the temporal bone of the skull. The cavernous sinus is an important structure because of its location and its contents which include the third cranial (oculomotor) nerve, the fourth cranial (trochlear) nerve, parts 1 (the ophthalmic nerve) and 2 (the maxillary nerve) of the fifth cranial (trigeminal) nerve, and the sixth cranial (abducens) nerve. (from: http://www.medterms.com/script/main/art.asp?articlekey=9153 )
If you look on this site it's in the purple part between the pituitary gland and the carotid artery. http://www.meddean.luc.edu/LUMEN/meded/grossanatomy/h_n/cn/dvs/dvs3.htm
He is now a teaching case. They took pictures today to present in class. He thought that was cool. So, anyway, between the eye surgeon, the neuro oncologist, and the neurosurgeon, they've decided to "wait and see" because surgery would cause more damage than just letting it be for now.
I bring him back in 6 wks and they'll study the other 3 kids eye problems and records-- Kelsey's the only one that hasn't had any issues with her eyes--My 15 year old is blind in his left eye (since he was 5/6) due to a tumor, My 13 year old had a virus at age 6 that caused her left eye to not move properly, but it straightened out, and my 12 year old had to have eye surgery about 3 years ago to correct a lazy eye.
That's about it for now. My house won't clean itself.
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