You know, I've come up with a new game show--Stump the Doctors. Three of my five children and I have a rare form of tumors and only two of them have been able to be removed, the rest or inoperable or, at best, stump the doctors as to what to do with them. They can go away just as quickly as they pop up, but...the wait... Now, that's the hard part.
Over the years I've seen many doctors just give me a blank stare and end by saying, I just don't know. Doctors are "practicing" medicine, after all, but, eventually, I'd love to just have the flu. Is that so much to ask?
Life, as I know it, has hit again after a few years on a plateau. The end of March I had "one" pop up in my jawline near the front, thus making eating a challenge. On the positive side, I've lost 20 lbs, though I'd love to have lost it another way. (I say "one" because I've had 4 different doctors all have different opinions as to what it might be) and before I could get all my mess straightened out my 8 year old son began seeing double and his eye started not tracking well the end of May, and is not now moving at all.
After a CT and a few fights with hospital staff (which if you know me, you know I don't confront people at all), the doctors were still puzzled, and Tuesday, the 3rd of July, I took him for an MRI. The MRI confirmed it to be a mass, though the doctors are still puzzled as to what to do and exactly what it is. Our regular neuro-oncologist seems to think it's the "usual" type of tumors, but will be investigating it more and getting back with me. He says it's right where the optic nerves meet so operating could be tricky and not and easy thing. I said, "have we ever had anything easy?" He just laughed. He's not having any pain or headaches, just frustration because he can't run, ride a bike, etc because he still sees 2 of everything.
I firmly believe if that game show existed we'd win hands down. Would the prize be to cover all medical expenses? I spent enough time crying over all this. My crying has finally turned to laughter, because life goes on, right? Time to pull the silver lining in this cloud and let the wind blow it away.
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